Symptom Diary

07/02/2000 - 07/08/2000
07/09/2000 - 07/15/2000
07/16/2000 - 07/22/2000
07/23/2000 - 07/29/2000
07/30/2000 - 08/05/2000
08/06/2000 - 08/12/2000
08/13/2000 - 08/19/2000
08/20/2000 - 08/26/2000
08/27/2000 - 09/02/2000
09/10/2000 - 09/16/2000
09/17/2000 - 09/23/2000
09/24/2000 - 09/30/2000
11/19/2000 - 11/25/2000
11/26/2000 - 12/02/2000
12/10/2000 - 12/16/2000

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Tuesday, December 12, 2000

17:14  Been smelling some very weird, strong smells the last couple of days. Motor co-ordination appalling - cut my finger today when cooking. Again. The knife was resting on the worktop at the time. Don't know if the smells are olfactory hallucinations or some new development in the synaesthesia. They're not food related either. At the moment I can smell what appears to be cheap men's aftershave, although I am the only one in the house and have been all day. Yesterday, while struggling over the bridge from Sainbury's, I smelled something dead.

Quite weak. Feel pretty sick today, in all honesty. Feels like someone has a hand inside my chest and is rooting around for somehing. Chest hurts quite a lot. Fingers are very stiff. I have been having trouble with temperature - I can be too hot when other people are too cold, and freezing when other people are taking off layers. Period was last week, and that didn't help. I have been getting quite dehydrated too. I'm also restless and irritable.

 

Wednesday, November 29, 2000

22:24  Even more tired today. Not much sleep last night. I've started getting that deep, restless pain in my legs again, particularly my calves. my head hurts, my eyes have been smarting, my ribs are aching and I've been quite nauseous. That odd smell is back again as well, just to add to the jollity. Got to get up tomorrow and fly up to Scotland. I'm hoping the pressure changes on the flight don't do horrible things to my tooth. It feels like the glands in my neck are swelling a little too - I'm hoping it's not another bug because I never really got over the one I picked up in Ireland. I've had a slight cough ever since. Rubbish immune system.

Maybe it's time to splash out in the health food shop and get some echinacea. I'm not sure my doctor would approve, but I feel like I have to do something to help myself, as the appointment for the stress management seems to be taking forever.

 

Tuesday, November 28, 2000

19:20  Extremely tired. Haven't been sleeping, the pain keeps me awake. My motor co-ordination has been dreadful today and I have been shaking quite badly, quite large amplitude shakes as well. My vision is now so blurred that I can barely read the computer screen, and my ears and neck and head hurt. I have also been feeling very sick and the IBS has been quite bad.

I have been feeling quite isolated and lonely and miserable today. I tried going out to celebrate Eric's birthday yesterday, but I managed one drink, then a coke, then I felt so queasy I had to come home. The pub wasn't even terribly busy. I found that quite depressing and almost humilaiting, to be unable to manage that.

My tooth still hurts and I am still having vivid dreams. I am also feeling the cold a lot and have lost my appetite.

 

Monday, November 27, 2000

12:40  Tired. Sleep has been badly disturbed for days. Cold and incredibly stiff. Feel like I have pulled a hamstring and my left wrist is really sore, as though I've fallen on it. It has been like that, on and off, for months. Appetite has tailed right off and I've been very shaky and having vision problems. Tooth doesn't hurt too much right now, but I think I can still feel the infection. Could just be the bruising left by the swelling, though. The antibiotics have helped. I have been having trouble with words again as well, which is always infuriating. Fairly upbeat, though, all things considered. Well, it was my birthday yesterday. As long as I don't think about all the crap I'm nearly ok.

 

Friday, November 24, 2000

12:46  Pain has been terrible the last couple of days. I'm pretty sure I've been close to overdoing the painkillers - the pain screws around with my head and I'm not sure what I've taken when, but am desperate to find relief from the pain somehow. The abscess on my tooth sends these agonising shots of pain up into my head and down my right side, so my right arm gets very weak or becomes useless. My sleep has been badly disturbed and I am extremely tired. I can't eat properly and I feel quite sick. All in all, things are not very good right now.

 

Tuesday, November 21, 2000

19:20  Toothache excrutiating. Can't talk properly, entire side of head aflame, face and tongue swollen. Feverish, right side very weak from pain travelling down. Managed to get dentist to move appointment til tomorrow. Been whimpering for an hour. Painkillers not helping much. Feels like jaw is broken. If I thought I could I'd take a pair of pliers and pull the tooth out. it feels like someone is trying to wedge a chisel between two of my teeth and lever them apart. It's agony.

 

Monday, November 20, 2000

11:03  The pain is dreadful at the moment. I had to take Frood to casualty with anaphylaxis last night, and sitting in the cubicle for 4 and a half hours was so painful that by the end I was practically beating my head against a wall. I cam very close to barging into the nurse's area and pleading with them to give us Frood prescription and take the needle out of his arm so that I could get home and take some painkillers.

I am incredibly stiff. I don't have the full range of movement in my hips. My shoulders have locked solid and I can't move my head properly. Every step is rather like walking on tacks, or having someone hammer at the soles of my feet so that the shock goes up through the bones, or both. I could swear I am changing shape into this wizened, hunched, shrunken figure because all my muscles are tightening up.

I'm very tired at the moment, but still waking up early. I was up three times last night getting more water. I have started waking up during the night again, after perhaps a couple of weeks of sleeping right through from about 1 - 2am to 5 - 6am, which has been nice. Dreams are still very intense and I'm finding it harder to stay in bed when the pain is really bad because I am getting more and more frustrated and restless at having nothing constructive to do.

14:34  My muscles and joints are stiffening up so much now that I can barely move. My fingers are very stiff, my left hip sends sharp sherds of pain down my leg every time I move the leg to walk. It hurts so much everywhere that I can't tell whether my toothache has improved or it is just not as significant compared to everything else now. My skin is flaking off all over the place and my coccyx is now so swollen that I am losing the skin at the very base of my spine, at the top of my buttocks, because it is rubbing. I can't straighten my head properly without wincing.