Symptom Diary

07/02/2000 - 07/08/2000
07/09/2000 - 07/15/2000
07/16/2000 - 07/22/2000
07/23/2000 - 07/29/2000
07/30/2000 - 08/05/2000
08/06/2000 - 08/12/2000
08/13/2000 - 08/19/2000
08/20/2000 - 08/26/2000
08/27/2000 - 09/02/2000
09/10/2000 - 09/16/2000
09/17/2000 - 09/23/2000
09/24/2000 - 09/30/2000
11/19/2000 - 11/25/2000
11/26/2000 - 12/02/2000
12/10/2000 - 12/16/2000

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Saturday, July 22, 2000

11:15  Feel a bit better today. Not so hot. Still quite hungry and still getting some nasty abdominal cramping. I can hear the wind whistling through the tree in the garden and that's strangely comforting. Head still feels a bit odd, almost as if someone has his hands on my face and is squashing my face in towards the middle, but only a hint. Thoughts a little bit clearer today also. Skin a little tender, feel like I will bruise easily. Shaking not too bad at all, barely noticeable. I hope this lasts. Gym day today.

13:02  Hot waves started again about an hour after breakfast. Pain back and getting worse. Returning to right temple. Can prepare for that to be very bad this afternoon after going to gym. Will take rehydration fluid as well as water. Muscle spasms in left arm, shoulders, ribs, middle of back. Losing thought coherency, web-cam effect coming back for first time in a while, or at least coming back enough for me to comment on it. Like vision being wobbly, only slightly more so. Seems connected to the headache. I hope this doesn't mean they are gong to tell me I have migraines again. Am sure that migraines are symptom, not cause (just like the depression).

20:05  Been to gym, felt ok, felt like I hadn't been, for some hours afterwards. Went through a hyperactive phase with shaking. Tired now. Been avoiding caffeine because of dehydration issues, so that might have something to do with it. Shoulders very stiff and sore. Having trouble thinking. Crampy feelings in arms, and hands. Elbow and knee joints sore. At least the synaesthesia hasn't been overwhelming today, although I went to the shop and the sky seemed to be stripey and all sorts of weird colours like purple and green. Feeling a bit nauseous and a tad faint.

 

Friday, July 21, 2000

11:28  Out to dinner last night. I always know I'll end up suffering the next day, especially when I was feeling pretty crummy to start off with. Not too bad so far. Up at reasonable time in circumstances (half nine). Head hurts, legs have that cramp-but-not-cramp feeling in the calves also in the feet. My knees are very stiff and sore. The skin on my back and shoulders still feels like it has been sunburned and today looks quite pink, although I haven't been in a situation where I could be sunburned. Eyes sticky and sore, although I have been drinking plenty of water. Stomach still sore - period pains on top of all of this. Sweating.

Now feel hungry, so might attempt breakfast although I feel a tad nauseous.

18:38  The burning has eased a little, but I'm suffering from bad brain fog. Very slow. Motor co-ordination poor. Memory problems. Pain bad in back between shoulders, in abdomen and down the shins and in lower back above pelvic bones on both sides. Head feels thick and foggy. Skin condition very poor, but that always happens around my period. My arms looked hard and vascular earlier, and were very red, but that has eased off. Going swimming later. Have been feeling very hyper, although also slow, which is very odd. Rode up bypass at 20mph from Touchwoods, have been very hungry. Synaesthesia has been bad - sometimes the clicks of the keyboard produce little yellow flashes of light and I have been smelling damp dog when I feel too hot. Weird.

22:23  Swim tiring. Form poor, speed down a lot. Could not get the crawl right. Shoulders too stiff and achey. Was far too hot, had to keep stopping due to overheating, even in the pool. Did 45 lengths in the end though (1125m), which is ok but not brilliant, and managed to do 2 of those underwater (not consecutively), which pleased me. The rest of the time Frood and I were just messing around trying to cool down. Now very hungry, stiff and sore. Left wrist painful. Ribs painful around bottom. Hot flushes feel like they spreading up from just below diaphragm into chest cavity, within the rib cage but along the outside of the cavity. Hard to describe. Back very sore. Still feel hyperactive, impatient, jittery, restless. Extremely restless. But also quite tired. Hard to describe feeling tired and hyperactive at the same time. I'm tired but also feel full of energy. Hungry.

Synaesthesia not too bad now but vision a bit wobbly. Very thirsty.

 

Thursday, July 20, 2000

12:14  Skin burning across my shoulders. It's like having bad sunburn and getting into a hot bath. Head painful, bad abdominal cramps with associated effects of frequent bowel movement. Vision wobbly today. All muscles in my back feel tight, but I get the impression if I try to loosen them up I'll start shaking very badly. Feel like I might be sick today at some point. Stressed, snappy and irritable, also tearful, but that's internal at the moment and I haven't cried yet. Can feel an aura of clinginess, as if I'm about to get upset over being left alone but I'm not yet. It's hard to describe. Breakfast eating very slowly. Upper jaw hurts in the bone. Back painful. Generally unhappy. Also tearful.

 

Wednesday, July 19, 2000

11:13  Very sore teeth and gums this morning. Head hurting, feel stiff and sore. Difficult to get up, but I've managed to eat my breakfast (muesli with skimmed milk and grapes). Legs feel stiffest at the moment, but I know my torso is very stiff I just haven't tried moving it very much yet. Also some minor stomach cramps, but they could be period-related.

Not a brilliant night's sleep. Eric had his radio on too loud and Marko was snoring. More nightmares, but not particularly scary ones, even though I think the subject matter was more intrinsically scary than many nightmares I have had.

Today is a gym day and I really don't feel like it. Skin is itchy and sore. Head feels stuffed full of stuff. Having trouble with words - this is taking me a very long time to write.

23:01  Gym session was tough and hard. Very hard. Had to get off the bike after only 15 minutes because my coccyx was so painful. It's very frustrating to have lost so much ground from being so sick for weeks. The swim wasn't very good either. Only 16 lengths. Teeth still hurt now, bad pain in back and ribs, certain amount of pain in head. Quite a few stabbing pains - the violent, blunt knitting needles are back with a vengeance. I'm trying not to flinch from each one.

A slight awareness of synaesthesia today - although I have come to the conclusion, based on the thoughts running through my head when inventing metaphors and similes these days, that it is always there, it's just that I only occasionally have my attention brought to it by something. Not sure what. Eyes feel dry and gritty. I don't like hot weather, although I am not as stiff as I was yesterday. Perhaps it really is the Ca/Mg that makes the difference.

Had trouble with left right rotation - always trying to turn door knobs the wrong way. Words have been getting jumbled too, and my hands have been rather crampy. Also having problems with short-term memory - going upstairs to do something, only to have to come back down because I have compeltely forgotten whatever it was. Very frustrating.

 

Tuesday, July 18, 2000

11:00  Holiday seems to have helped a bit. Was good to get away from vast reams of people, even if only for a couple of days. Forgot to take my Ca/Mg supplement, though, although I remembered the others. I had very bad cramps all weekend, excrutiating ones, with muscle spasms and severe stiffness if I didn't keep myself mobile. I am not sure how much of that was due to the reasonable amount of walking we did while away or whether it was a result of not taking the Ca/Mg. My legs were still crampy yesterday but are easing up today. Still sore though. Very sore in obliques also, and ribs still tender.

Bit sick at the moment, having waves of feeling this immense pressure in my head and the sensation that something is or is about to go terribly wrong. Not go terribly wrong as in a series of unfortunate events wrong, not a feeling of impending doom in that sense, but a feeling that something is or is about to be wrong in the way a broken bone feels wrong. Still rather shaky. Skin quite bad, vision playing up. Some of it may be down to PMT - especially the incredibly tender breasts, which are agony to touch near the armpit. My coccyx is also sore and tender again and I noticed a red mark on my spine where that bruise keeps coming up, so that's going to be bruised again in the next couple of days.

Sleep hasn't been too bad, although I'm still waking up early even when I got to bed really late, and of course even earlier when I go to bed early, although going to bed early seems to mean I wake up more often during the night as well. Still dreaming lots. Got the escape urge back and I have only just got back from being away.

21:46  Got back from seeing new doctor and passed out on chair, pain in head intense. Hot and dizzy. Spasm down outside of right hand now into wrist and spreading into forearm. Decided not to go swimming on grounds that I didn't think it was safe. Will go tomorrow after gym if I can get into gym early enough, or go on Friday. Feet feel funny - almost sticky and swollen. Legs feeling crampy too. Not muscle crampy - the only way I can describe that crampy feeling is like growing pains. It's too deep and homogenous to be muscle cramp, but sometimes I get muscle cramp on top of that.

Found a new bruise. Not a big one, at the top of my left arm by the armpit. Face is feeling like it's going into spasm as well. That really is unpleasant. Head is desperately sore, so sore it is making my teeth hurt. Back hurting too, and deep pains in my bones and joints.