Symptom Diary



07/02/2000 - 07/08/2000
07/09/2000 - 07/15/2000
07/16/2000 - 07/22/2000
07/23/2000 - 07/29/2000
07/30/2000 - 08/05/2000
08/06/2000 - 08/12/2000
08/13/2000 - 08/19/2000
08/20/2000 - 08/26/2000
08/27/2000 - 09/02/2000
09/10/2000 - 09/16/2000
09/17/2000 - 09/23/2000
09/24/2000 - 09/30/2000
11/19/2000 - 11/25/2000
11/26/2000 - 12/02/2000
12/10/2000 - 12/16/2000

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Saturday, July 8, 2000

17:37  Feeling empty today. Pain there but generally distant, except for occasional stabbings in my hips and ribs. Back bruised again. No other bruises that I have noticed. Appetite reasonable, have managed both breakfast and lunch today. Another night of vivid and memorable dreams. I swear they are getting more and more involved. Decided not to go to gym today because of pain in hips. Will book a session for tomorrow as Frood doing laundry and that gives me a couple of hours when he'll be out anyway. Thinking is rather difficult. I can't quite describe the feeling of distance, of not really being here, of inhabiting my body rather than being it. That is particularly strong today. I have just reserved GBP45 worth of rucksack (Berghaus freeflow 25L) on the grounds that I want to get out walking more and my current daysack doesn't have a padded waistbelt - I think I need that with my back in its current state. Not sure I can really justify it, but right now I'm too empty to think about it much. I'm prepared to do almost anything I think might make me feel better, and if this gets me out more on the basis that I've paid a substantial sum for it and I'd better bloody use it, then that's all well and good.

Skin burning and itching right now too. Might try some stretching later on and see if that eases any of the aches.

17:56  Just thought I'd note that I'm crying now. Don't really know why but the tears are dripping onto the keyboard and my throat is constricted and all I can think about is escaping somewhere wild. A friend of mine said the other day that depression is characterised by not wanting to do things. Oh I want to do things. I want to get out. I want to get a place of our own and beasts. I feel like going back down to Touchwoods right now and writing them a cheque for that daysac and jumping on a train. Only I'd be better off taking my big pack, especially as it's past closing time and I don't know when I'd be coming back anyway.

It's like having some sort of close fitting cage around the chest with someone turning a handle that makes it grow tighter and tighter until you can hardly breathe for the claustrophobia and desperation.

 

Friday, July 7, 2000

14:06  Woke up in terrible state this morning. Muscles appeared to have solidified. Pain everywhere. Eyes dragging. Serves me right for not getting up the first time I woke up properly (as opposed to the other waking ups at 2:30, 3:00, 3:45, 4:20 etc etc) at 5am when I felt ok. Maybe it is time to start getting out of bed the minute I feel capable, no matter how little sleep I have had or how early it is. Very dehydrated during the night. Absolutely exhausted. Doesn't feel like the gym did any damage, but does feel like the usual aches of a gym session are more pressing than they should be. Hurts most around the ribs and just to the inside of the pelvic bones in the front. Shoulders going into spasm occasionally too. Feel fat and bloated today and my spine feels like it's curving in the wrong direction.

Interesting to note that I seem to have a slight mismatch between my awareness of my body and my actual body - when Andy was touching my spine I was convinced that he was about a finger's width to the left of it. There seems to be an offset of about an centimetre and a half between my sensory system and my physical body. Which is very odd and rather inexplicable. But if I touch my own spine it doesn't feel off at all. There is a stronger sense of touching my spine in my finger than being touched by my finger in my spine.

I seem to be rambling. Does this even make sense? Hungry now. Have a craving to get out and do something.today. Keep thinking thoughts of hiking equipment that takes my weaknesses into account. Need to get the bike sorted so I can get out despite the fact that I can't drive very far.

Seems so odd to be considering taking the bike for long trips rather than the car because I'm ill.

22:10  Pain bad in back right now. Feeling stressed in a sort of distant way. Sharp, pinpoint pains in head, shoulders, hips, ribs and cramps in knees and calves. One of those days where I have to be careful to find something really tempting for dinner or I won't want to eat at all. Fish pie. Absorb myself in the preparation, try not to think about the fact I'm going to have to eat it. Sometimes cooking puts me right off, even though I love to cook. Someone once said that smelling all that food makes your brain think you have already eaten so you no longer feel hungry.

Chest hurts quite badly around solar plexus. Getting panicky about finance and my future. Really wish we could find somewhere of our own to live where I could have a cat or dog to keep me company when I'm stuck alone at home. Isolation kills me sometimes. No chance of that until we get settled and I need to finish my PhD for that. No motivation and It's not long before I have to go back. Occasionally think about going over to Silsoe to get some lit research done but my mind clamps down on that. Too many bad personal experiences. I just don't know how I'm going to find the motivation to go back. Wish I had someone to talk to about it, but don't know who. The closer the date gets the worse I feel about it. So much to do.

Haven't been sick for quite a few days now, not since last Friday night. That's pretty good going. Even then it was more of a retch than actual vomiting. Vision has been playing up all week, blurring sometimes so I can't see properly, but the worst thing at the moment is the pain. Digestive system playing up as per usual. Managing generally to stick to the high-ish protein, low-processing diet. Certainly haven't had much junk food recently, although scavenge rules allow for the odd pasty in desperate circumstances.

Am now taking supplements - Quest once-a-day chelated multivit, Cal-Mag 500-250, Vit E 600iu and Quest Gamma Marine 750mg (Evening Primrose, Borage and Fish oil). Will make a note if I notice any significant improvement.

The summer cold seems to be making another bid to reduce me to a phlegmy mess, which is terribly frustrating. Trying to justify the purchase of a few things I think might make my life easier in terms of getting out and about - a 25L daysack with better back support so I can get out walking more and such things. Don't really have the funds for it and that is frustrating and worrying me as well.

 

Thursday, July 6, 2000

09:49  Woke up very stiff and sore. Vivid dreams that were impossible to wake up from fully. Currently painful in right side below rib cage, where I would get a stitich, just like I have been running around all night but without the shortness of breath. Feel bruised and extremely tired, somewhat dehydrated. Tired not real fatigue, not prventing me doing things, just making my muscles feel heavy and my head feel vaguely fuzzy round the edges. Dream fragments particularly vivid. Late for work again. Brain fog strong and can't find half the things I need. Like my sunglasses..... oh. There they are on the desk in front of me. Just need to find my badge and my shoes now.

23:07  Day was...

Well. It could have been worse. Fairly stressful, physically stiff, too restless to get comfy at all. Depression came in quite badly just after lunch (noodles and peanut butter on wholemeal bread). Started crying even though I was at work and therefore in a public place and on duty. Phoned Marko, meeped at him down the phone for a while, but he had to get to work too. Pain has been constant but dull, just enough to wear without actually being enough to shorten the breath and make it a necessity to give up on one's current endeavours and go home and curl up somewhere.

Went to the gym for the first time in 2 and a half weeks tonight, just did a light session. Have lost a lot of the progress I made over the couple of months when I was feeling better. Back is starting to hurt again, I know it's bruised even though I haven't looked. I can't figure out what I'm doing wrong, my form is fine. I didn't drink enough water, which might explain the pounding, dizzy-making headache I got towards the end (750mls not enough). Scared myself on the new step machine which has a heart rate monitor - working at my usual rat I had a heartrate of 178 in 10 minutes. Used a relaxation technique and blipped it down to 140 but nearly fell off. I didn't feel bad though. Had to make it a very light session. Not much energy and my muscles got very tired very quickly on the strength exercises. Had to leave myself at 160 crunches instead of the usual 320.

Tired now. Depression hasn't lifted but has sort of gone dull and off to one side, like I'm too tired to be really depressed. But not sleepy tired. Emotionally tired. Flat and dull. Still need to eat and have no appetite. Not looking forward to going to bed for some reason. The invasion of my sleep by vivid and nightmarish dreams is getting to me. I close me eyes and I'm dreaming and it doesn't let up.

Weight now 140lbs dead on, according to the one in the gym.

 

Wednesday, July 5, 2000

23:12  Pain today was bearable up until about 3 hours ago. Getting very difficult to sit on it now. Primarily around ribs and abdomen. Getting worried about kidneys again purely because of the site of the pain. Sigh. Very stressed and shaky for no apparent reason. Had headache today that was so bad it made my eyes water but I am at least getting rid of that damn cold that has plagued me for two whole weeks now. Might even be able to get to the gym tomorrow.

Back pain, which was so unbearable I ended up in Casualty only the other day has subsided to a squashable level. I hurt most just underneath the ribs right now. Eating late again, which we really should stop, and I feel too sick to be hungry. Getting nervous about trying to find a doctor and I keep thinking time is getting short for getting back to my PhD and I haven't really done anything about it. April, May, June...July now, month 4 of my suspension. Crumbs.